The Scheuermann’s Disease Fund is the first charity of its kind to help those suffering from Scheuermann’s Disease/kyphosis and its long-term secondary effects.
"Living with Scheuermann's Disease" Project Video created by Cinematographer Bethany Bailie (Bethnav86@gmail.com) and Doug Strott;
Song Credits: Greg Holden, "Hold Tight" (www.gregholdenonline.com, included with artist approval); Lady Antebellum, "I Was Here" (www.ladyantebellum.com)
Facebook Support Groups
Some wonderful people have setup Facebook support groups that are solely dedicated to people suffering from Scheuermann's Disease.
Please check out these groups as the members are very knowledgeable and supportive:
What is Scheuermann's Disease?
Life Changing Spinal Innovation
Scheuermann's Disease is a spinal (skeletal) disease that typically presents itself in children during adolescence. It is often noted by an accentuated curvature, or "hunched back" and if left untreated, may lead to significant health complications later in life. Studies suggest that about 2% of the population is affected by this disease.
For the worst sufferers of Scheuermann’s Disease, the effects may include rapid acceleration of degenerative disc disease, a sedentary lifestyle as a result of radiating spinal pain, multiple surgeries to correct spinal and body deformities, debilitating lower back pain, erosive spinal osteoarthritis, significant mental stress associated with chronic pain, and severe depression and anxiety.
Scheuermann’s Disease, or Scheuermann’s Kyphosis as it is sometimes called, is believed to be caused by abnormal bone growth in the vertebrae, potentially by an interruption of blood flow. This happens most often during a growth spurt during adolescence that causes the vertebrae to change from a healthy rectangular shape to triangular wedge shapes.
The Scheuermann’s Disease Fund was created to improve the public's awareness and recognition of this spinal deformity, improve early detection in adolescents, and to work with the medical community to better understand the long-term secondary effects Scheuermann's can cause.
It is with a heavy heart that we must announce the POSTPONEMENT OF THE 7TH ANNUAL FUNDRAISER FOR THE SCHEUERMANN’S DISEASE FUND FOR OCTOBER 17TH FOR 2021.
However, we are looking to reschedule in April of 2022 should the health situation rebound regarding Covid. Let’s look forward to APRIL!!
There are a number of reasons for this difficult decision which include the change in COVID restrictions for indoor gatherings, the LARGE number of inside fall gatherings and festivals that have already canceled (considering most of our activities are inside), and the average age of our attendees for the event (like me!).
If we were to continue with the event and have to cancel at a later date, the charity could lose enough money to put us into a desperate financial situation.
However, we are looking to host potentially smaller fundraisers over the fall and winter so keep your eyes peeled for announcements on our website and Facebook page (www.facebook.com/sdfund).
I am truly sorry for this announcement. Thank you all for your help and support.
Scoliosis Research Society
The Scoliosis Association (UK)
Here is a little help called a "browser extension": Smilematic
It will automatically redirect you to smile.amazon.com whenever you shop Amazon so you don't forget to type it in.
Here's the link for the tool:
If you are like most of us with Scheuermann's Disease, you have probably had a difficult time finding a physician who is right for you. Check out our international "Doctor Database" comprised of physicians referred by patients with SD who want others to obtain the same great treatment. See if a doctor is practicing close to you! Or, refer a physician so others can benefit from the same great treatment!
Doug Strott - Founder
Doug Strott has over 25 years of experience in the financial services industry with his last job being a Regional Director for Dimensional Fund Advisors in Austin, TX. However, due to the long-lasting ancillary effects of Scheuermann’s Disease, and acute spinal arthritis, Mr. Strott was forced into disability.
Filed in the United States District Court for the Western District of Pennsylvania.
This is a winning case in FEDERAL US COURT that can be used as a persuasive argument with Scheuermann's Disease as the primary cause for LONG-TERM DISABILITY.
SOSORT : International Society on Scoliosis Orthopaedic and