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The Scheuermann’s Disease Fund is the first charity of its kind to help those suffering from Scheuermann’s Disease/kyphosis and its long-term secondary effects. 

Please watch:
Living with Scheuermann's Disease

"Living with Scheuermann's Disease" Project Video created by Cinematographer Bethany Bailie (Bethnav86@gmail.com) and Doug Strott; 
Song Credits: Greg Holden, "Hold Tight" (www.gregholdenonline.com, included with artist approval); Lady Antebellum, "I Was Here" (www.ladyantebellum.com)

What is Scheuermann's Disease?

Scheuermann's Disease is a spinal (skeletal) disease that typically presents itself in children during adolescence.  It is often noted by an accentuated curvature, or "hunched back" and if left untreated, may lead to significant health complications later in life. Studies suggest that about 2% of the population is affected by this disease. 

 

For the worst sufferers of Scheuermann’s Disease, the effects may include rapid acceleration of degenerative disc disease, a sedentary lifestyle as a result of radiating spinal pain, multiple surgeries to correct spinal and body deformities, debilitating lower back pain, erosive spinal osteoarthritis, significant mental stress associated with chronic pain, and severe depression and anxiety.

 

Scheuermann’s Disease, or Scheuermann’s Kyphosis as it is sometimes called, is believed to be caused by abnormal bone growth in the vertebrae, potentially by an interruption of blood flow. This happens most often during a growth spurt during adolescence that causes the vertebrae to change from a healthy rectangular shape to triangular wedge shapes.

 

The Scheuermann’s Disease Fund was created to improve the public's awareness and recognition of this spinal deformity, improve early detection in adolescents, and to work with the medical community to better understand the long-term secondary effects Scheuermann's can cause.

New Data Gathering Project for Scheuermann's Disease Research - Please Read!

The Scheuermann's Disease Fund has partnered with the Coordination of Rare Diseases at Sanford (CoRDS) to develop a questionnaire designed to collect data on the secondary health problems that patients with Scheuermann's develop over time.
The collected data will then be given to select researchers in hopes of generating the first comprehensive long-term research study on the secondary health problems affecting Scheuermann's patients as we age. 

7th Annual Fundraiser for The Scheuermann's Disease Fund

We are proud to announce that the

7th Annual Fundraiser for The Scheuermann's Disease Fund was a HUGE success!! 

Due to the hard work of our volunteers, the generosity and kindness of our friends, family members, SPONSORS (community leaders and businesses) as well as DONORS (people in attendance and from afar), we were able to raise a

record $20,500!!! 

THANK YOU TO EVERYONE INVOLVED!!

Find a Treating Doctor for Scheuermann's!  
International Doctor Database

If you are like most of us with Scheuermann's Disease, you have probably had a difficult time finding a physician who is right for you.  Check out our international "Doctor Database" comprised of physicians referred by patients with SD who want others to obtain the same great treatment.   See if a doctor is practicing close to you!  
Or, refer a physician so others can benefit from the same great treatment!

Social Media Support Groups for People Affected by Scheuermann's Disease

Some wonderful people have setup Facebook support groups that are solely dedicated to people suffering from Scheuermann's Disease and other similar spinal deformities.

  

Please consider joining these groups, LINKS BELOW, as the members are very knowledgeable, kind, and supportive:

Scheuermann's kyphosis 

Scheuermann's Disease

Scheuermann's Disease, Kyphosis, & Kyphoscoliosis

Scheuermann's Disease in the UK

Doug Strott - Founder, Volunteer
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Doug Strott has over 25 years of experience in the financial services industry with his last job being a Regional Director for Dimensional Fund Advisors in Austin, TX.  However, due to the long-lasting ancillary effects of Scheuermann’s Disease, and acute spinal arthritis, Mr. Strott's health required that he take retirement disability. 

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Case 2:13-cv-01245-DSC Document 44

 

Filed in the United States District Court for the Western District of Pennsylvania.

 

This is a winning case in FEDERAL US COURT that can be used as a persuasive argument with Scheuermann's Disease as the primary cause for LONG-TERM DISABILITY.

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