The Scheuermann’s Disease Fund is the first charity of its kind to help those suffering from Scheuermann’s Disease/kyphosis and its long-term secondary effects.
Living with Scheuermann's Disease
"Living with Scheuermann's Disease" Project Video created by Cinematographer Bethany Bailie (Bethnav86@gmail.com) and Doug Strott;
Song Credits: Greg Holden, "Hold Tight" (www.gregholdenonline.com, included with artist approval); Lady Antebellum, "I Was Here" (www.ladyantebellum.com)
What is Scheuermann's Disease?
Scheuermann's Disease is a spinal (skeletal) disease that typically presents itself in children during adolescence. It is often noted by an accentuated curvature, or "hunched back" and if left untreated, may lead to significant health complications later in life. Studies suggest that about 2% of the population is affected by this disease.
For the worst sufferers of Scheuermann’s Disease, the effects may include rapid acceleration of degenerative disc disease, a sedentary lifestyle as a result of radiating spinal pain, multiple surgeries to correct spinal and body deformities, debilitating lower back pain, erosive spinal osteoarthritis, significant mental stress associated with chronic pain, and severe depression and anxiety.
Scheuermann’s Disease, or Scheuermann’s Kyphosis as it is sometimes called, is believed to be caused by abnormal bone growth in the vertebrae, potentially by an interruption of blood flow. This happens most often during a growth spurt during adolescence that causes the vertebrae to change from a healthy rectangular shape to triangular wedge shapes.
The Scheuermann’s Disease Fund was created to improve the public's awareness and recognition of this spinal deformity, improve early detection in adolescents, and to work with the medical community to better understand the long-term secondary effects Scheuermann's can cause.
February 2022 Virtual Rare Disease Conference
24 Hours of Rare
Scoliosis Research Society
The Scheuermann's Disease Fund Presentation
Facebook Support Groups for SD!!
Some wonderful people have setup Facebook support groups that are solely dedicated to people suffering from Scheuermann's Disease and other similar spinal deformities.
Please consider joining these groups as the members are very knowledgeable, kind, and supportive:
The Scoliosis Association (UK)
Life Changing Spinal Innovation
Here is a little help called a "browser extension": Smilematic!
Here's the link for the tool:
The extension will automatically redirect you to smile.amazon.com whenever you shop.
Once you choose "Scheuermann's Disease Fund" as your charity of choice, Amazon will make a small donation for every purchase you make on Smile.Amazon.com!! A great way to help the charity!! Thank you for thinking of us!
SOSORT : International Society on Scoliosis Orthopaedic and
If you are like most of us with Scheuermann's Disease, you have probably had a difficult time finding a physician who is right for you. Check out our international "Doctor Database" comprised of physicians referred by patients with SD who want others to obtain the same great treatment. See if a doctor is practicing close to you! Or, refer a physician so others can benefit from the same great treatment!
Doug Strott - Founder
Doug Strott has over 25 years of experience in the financial services industry with his last job being a Regional Director for Dimensional Fund Advisors in Austin, TX. However, due to the long-lasting ancillary effects of Scheuermann’s Disease, and acute spinal arthritis, Mr. Strott was forced into disability.
Filed in the United States District Court for the Western District of Pennsylvania.
This is a winning case in FEDERAL US COURT that can be used as a persuasive argument with Scheuermann's Disease as the primary cause for LONG-TERM DISABILITY.