Privacy Policy

Effective Date: December 16, 2025
Website: sdfund1.org
Organization: Scheuermann’s Disease Fund (SDF), a 501(c)(3) nonprofit organization

Information We Collect

We collect information in several ways to provide services, process donations, and improve our mission outreach:

Personal Information:
- Name, email address, phone number, and mailing address (when you donate, register for events, or contact us).
- Demographic details voluntarily provided in surveys or questionnaires.
Payment Information:
- Donations are processed securely through third-party payment processors.
- SDF does not store credit card or banking details on our servers.
Health-Related Information:
- Voluntary submissions such as patient stories, survey responses, or participation in research initiatives.
- This information is used only with consent and may be anonymized for awareness or research purposes.
Technical Data:
- IP address, browser type, operating system, device identifiers, and referring URLs.
- Cookies and analytics tools track site usage patterns to improve performance.

How We Use Your Information

Your information is used to support our mission and improve your experience:

Sharing of Information

We respect your privacy and limit sharing:

No Sale of Data: We do not sell, rent, or trade personal information.
Service Providers: Data may be shared with trusted vendors (payment processors, email platforms, analytics providers) strictly for operational purposes.
Research Participation: Health-related data is anonymized before being used in research or awareness campaigns.
Legal Compliance: Information may be disclosed if required by law, regulation, or court order.

Cookies & Tracking Technologies

Cookies are used to improve navigation, remember preferences, and analyze traffic.
Analytics tools (such as Google Analytics) may collect anonymized usage data.
You can disable cookies in your browser settings, but some features may not function properly.

Data Security

We take reasonable steps to protect your information:

SSL encryption protects data transmitted through sdfund1.org.
Access to donor and participant records is restricted to authorized staff and volunteers.
Regular audits and updates are performed to maintain security standards.
Despite safeguards, no system is 100% secure; we encourage safe online practices.

Your Rights

Depending on your location, you may have the following rights:

Access: Request a copy of the personal information we hold about you.
Correction: Request updates or corrections to inaccurate information.
Deletion: Request removal of your personal information, subject to legal and operational requirements.
Opt-Out: Unsubscribe from communications at any time.
Data Portability (GDPR): Request transfer of your information to another service provider.

Requests can be made by contacting us directly (see Section 9).

Children’s Privacy

Our services are not directed to children under 13.
We do not knowingly collect information from children.
If we learn that a child has submitted personal information, we will delete it promptly.

Third-Party Links

sdfund1.org may contain links to external websites.
We are not responsible for the privacy practices or content of those sites.
We encourage you to review the privacy policies of any third-party sites you visit.

International Visitors

If you access sdfund1.org from outside the United States, your information may be transferred to and stored in the U.S.
By using our site, you consent to this transfer.
We comply with applicable international privacy laws, including GDPR for EU visitors.

Changes to This Policy

Scheuermann’s Disease Fund
Email: info@sdfund.org
Phone: 724-436-1271